Thursday, March 05, 2009
I can't think of a catchy title
Brain fog has taken over. I'm totally overwhelmed by this entire thing. I think I have a handle on it one second and then it's lost by conflicting information I find. I spoke with my doctor yesterday. She wants me to see a specialist in Boston and also wants me to registered at the NIH for trials (not happening).
I ordered my MedicAlert charm and a bracelet from Lauren's Hope. They have pretty chains for medical bracelets and if I have to wear one of those suckers - I want it to be pretty damn it! I like the MedicAlert system. I gave them all of my information (and I mean ALL of my information) and they have it in their database. Gd forbid something were to happen to me and I was alone, they would contact Marc. They have a list of my meds which is growing daily - so far we have H1 & H2 inhibitors, an antihistamine nasal spray, wellbutrin and the occassional klonopin thrown in for bad days. I also carry an epi pen and we may be adding a mast cell stabilizer to the mix too. They also have the name of my doctors and also my insurance info. Pretty cool.
I wish I understood this disease more. It's the not knowing that's driving me nuts!